We provide worldwide logistical support to patients with MPS and other rare conditions.
Our services were developed in response to the complex requirements of patients with rare and ultra-rare conditions.
Often patients will need to travel long distances to attend their clinical trial centre and may even need to relocate for the duration of the trial.
With in-depth knowledge of the needs of these patients and their families, we are able to provide the support they need to access, and remain on, your clinical trial.
What we can Provide:
We are experts in the rare and ultra-rare diseases field, providing a patient-led service and experienced in finding solutions to unique challenges.
Our worldwide service includes out of hours support which is available 24 hours a day, seven days a week, and can be accessed by non-English speaking families.
We have created a flexible and bespoke approach to meet the
wide-ranging logistical needs of the patients.
Prompt reimbursement of study related expenses.