There is often a lack of published information on the natural history and impact
of rare diseases.
Through the membership of the MPS Society UK, we have access to 1300 patients with MPS and related lysosomal storage diseases; and our close working partnerships with international rare disease networks and individual patient organisations allows us to conduct studies across global patient populations.
What we can Provide
We can design and conduct a bespoke study specifically designed to address your information needs, and offer:
A highly qualified and experienced team to create a bespoke solution to answer your research question.
A custom study to meet your needs including postal and on-line questionnaires, patient interviews and focus groups.
A multi-national study through our extensive network of patient organisations.
Full analysis, reporting and publication of your study.